Executive Director - Data Privacy Officer

Company: Ionis
Location: Carlsbad
Posted on: May 26, 2023

Job Description:

If you are a job seeker with a disability and require a reasonable accommodation to apply for one of our jobs, you will find the contact information to request the appropriate accommodation by visiting the following page: Executive Director - Data Privacy Officer Job Category: General & Administrative - Ionis Ionis Pharmaceuticals, Inc., is headquartered in Carlsbad, California, with offices in Boston, Massachusetts, and Dublin, Ireland. For more than 30 years, Ionis has been the leader in RNA-targeted therapy, pioneering new markets and changing standards of care with our novel antisense technology. Ionis currently has three marketed medicines and a premier late-stage pipeline highlighted by industry-leading cardiovascular and neurological franchises. Our scientific innovation began and continues with the knowledge that sick people depend on us, which fuels our vision of becoming a leading, fully integrated biotechnology company.As the first company to fully harness the power of RNA technology for human therapeutics, Ionis' platform continues to revolutionize drug discovery and transform lives for patients with unmet needs. We are building upon our innovative research and drug development excellence to provide greater value to patients, and we are well positioned financially to deliver on our strategic goals.Ionis is a challenging, motivating and rewarding environment designed to foster innovation and scientific excellence. Our success is a direct result of our outstanding employees. We are interested in bringing together a diverse group of individuals with different skill sets and perspectives into this creative environment to be part of a productive and inclusive team. While acknowledging people are actively engaged in hybrid/remote work, we continue to invest time, money, and energy into making our workplace locations a place where our culture and employees can thrive. We believe engaging on a day-to-day basis, in person, builds solid and lasting relationships, and contributes positively to our culture and innovation. From the heart of our stunning Carlsbad campus, we aim to provide a central connection point for all our employees. These facilities give us the opportunity to connect cross-functionally, collaborate and to build on the success of our business as we continue to grow. Join us and experience our unique culture while you develop and expand your career. -EXECUTIVE DIRECTOR - DATA PRIVACY OFFICER The Data Privacy Officer directs the Company's privacy-related activities, specifically the collection, processing, storage, disclosure, and use of personal data in coordination with appropriate cross-functional members of the organization. The position reports to the Chief Compliance Officer. THE DATA PRIVACY OFFICER IS RESPONSIBLE FOR THE FOLLOWING TASKS:

• Design, develop, and implement appropriate privacy program elements, including identifying appropriate policy frameworks, developing staff and contractor training plans, and monitoring and evaluating program efficacy.
• Track and synthesize emerging privacy trends, laws, and regulations across the U.S. and internationally.
• Maintain subject matter expertise on relevant privacy laws and regulations.
• Collaborate with internal and external stakeholders on programs and projects involving the handling and sharing of personal information within the company and with third parties, clients, suppliers, and partners, to ensure personal information protection obligations are met.
• Develop and implement organization-wide privacy policies and procedures, including without limitation:
  • Privacy policies and privacy notices;
  • Authorization and consent forms;
  • Individual requests for correction of or access to information;
  • Record retention and destruction protocols.
  • Work with Legal to provide expertise on the development of data sharing agreements, privacy schedules, and other legal instruments.
  • Collaborate across functional areas, including Legal, IT and Internal Audit, to maintain organizational compliance with laws regarding privacy, freedom of information, security, electronic transactions, and protection of information assets.
  • Advise on privacy impact assessments, support the completion of risk assessments, and conduct related ongoing compliance monitoring activities in consultation with company and contract resources.
  • Support the provision of effective and timely responses to privacy breaches in accordance with the company's privacy breach incident response plan.
  • Assist in capturing, maintaining, analyzing, and interpreting compliance data. Prepare regular reports for the senior leadership and the Board of Directors to ensure consistent and adequate privacy risk management.
  • Review privacy-related complaints generated from the business and provide guidance on remediation. Escalate and consult with subject matter experts, when necessary to ensure that all complaints are handled diligently and appropriately.
  • Participate in the development, implementation, and ongoing monitoring of all major new projects and initiatives, to ensure privacy risks, concerns, requirements, and responsibilities are addressed. -QUALIFICATIONS
    • At least five years in a compliance, audit/risk or privacy role within a health care company or clinical trial organization.
    • CIPP Certification as an Information Privacy Professional (CIPM, CIPP/C or CIPT).
    • CRCM (Certified Regulatory Compliance Manager) certification, or CISM (Certified Information Security Manager) preferred. THE IDEAL CANDIDATE WILL POSSESS:
      • Robust understanding of common privacy industry standards and regulations and industry frameworks.
      • Successful track record of thriving in both a highly regulated industry and a fast paced, entrepreneurial, and dynamic environment.
      • Strong interest in building privacy program elements in the research, development, and commercial biotech space.
      • Clear results orientation and focus on achieving both short- and long-term goals.
      • Ability to navigate "white space" or ambiguous situations to drive and execute an agenda in a fluid environment.
      • Ability to champion privacy and communicate effectively to cross-functional stakeholders about changing privacy requirements and expectations.
      • Ability to manage cross-functional projects/programs.
      • Highly developed interpersonal, presentation, and communications skills (written and oral) coupled with strategic influencing skills and the ability to drive agreement through intellect, interpersonal, and negotiation skills.
      • Strong judgment, influencing skills, integrity, and discretion in handling highly sensitive issues.
      • Ability to effectively manage privacy risk assessments, and risk mitigation efforts.
      • Strong project management, process management, and organizational skills.
      • A collaborative, energetic, solution-oriented, and innovative work ethic.
      • Ability to balance operating independently with appropriate escalation and interaction with staff and leadership.
      • Willingness to work as a team player and interact with associates across functions, departments, and job levels, both inside and outside the Compliance department. Please visit our website, www.ionispharma.com for more information about Ionis and to apply for this position; reference requisition # IONIS003047Ionis offers an excellent benefits package! Follow this link for more details: Ionis Benefits The pay scale for this position is $182,904 to $261,250NO PHONE CALLS PLEASE. PRINCIPALS ONLY.Ionis Pharmaceuticals, Inc. and all its subsidiaries are proud to be EEO employers.

Keywords: Ionis, San Diego , Executive Director - Data Privacy Officer, Executive , Carlsbad, California